Fighting the unknown: Fox family manages rare disease
By GLENETTA SHUEY
Special to the Daily News
The National Organization of Rare Diseases [NORD] Database provides brief introductions for patients and their families to more than 1,200 rare diseases. This is not a comprehensive database since there are nearly 7,000 diseases considered rare in the United States. Rare diseases do not get the attention as more common diseases do; however, according to those afflicted and their loved ones, the rarity of the disease does not diminish the severity of it. In reality, it is often extremely difficult to find experts to manage the disease.subscribe or by calling 337-824-3011.
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